Zdravstvena pismenost medicinskih sester in pacienti z oviranostmi
DOI:
https://doi.org/10.37886/ip.2023.002Ključne besede:
oviranost, pacient, medicinska sestra, zdravstvena pismenost, znanjePovzetek
Raziskovalno vprašanje (RQ): Kako medicinske sestre obvladajo delo z invalidnimi bolniki glede na znanja, ki jih pridobijo na formalnem in neformalnem izobraževanju?
Namen: Posebne potrebe oseb z ovirami so del človeškega življenja. Osebe z ovirami se soočajo z mnogimi preprekami in odnos do njih sodi med najpomembnejše. Zavedanje pomembnosti zdravstvene pismenosti daje zdravstvenim delavcem priložnost za podporo pacientom in njihovim družinam pri premagovanju ovir. Namen raziskave je bil ugotoviti, koliko znanja za delu s pacienti s posebnimi potrebami so medicinske sestre pridobile med formalnim izobraževanjem, ugotoviti njihove potrebe po pridobivanju dodatnega znanja, ugotoviti vpliv osebnih izkušenj na njihovo stališče in odnos do pacientov s posebnimi potrebami ter ugotoviti, kakšne izkušnje imajo s svojci pacientov s posebnimi potrebami
Metoda: Uporabljena je bila kvalitativna paradigma raziskovanja, podatke smo zbirali z anketiranjem. Podatke smo zbirali s pomočjo strukturiranega vprašalnika. Pri interpretaciji podatkov oz. besednih zapisov anketirancev smo uporabili večfazni postopek kvalitativne analize vsebine. Z analizo vsebine odgovorov anketirancev smo oblikovali tri glavne teme: (1) izkušnje z negovanjem pacientov z ovirami, (2) izkušnje s svojci pacientov z ovirami ter (3) pomembnost znanja za delo s pacienti z ovirami. Zbrane podatke smo kodirali in na koncu pripravili pojasnila ugotovitev.
Rezultati: Ugotovitve raziskave med medicinskimi sestrami kažejo na potrebo po vključitvi izobraževanja s področja posebnih potreb oseb z ovirami v izobraževalni kurikulum medicinskih sester na dodiplomskem in na podiplomskem izobraževanju. Medicinske sestre svoje znanje za delo z osebami z ovirami pridobivajo tekom delovnega procesa, pa tudi z dodatnim usposabljanjem in izobraževanjem. Medicinske sestre imajo osebne in profesionalne izkušnje s tega področja, pri čemer imajo tako s pacienti z ovirami kot tudi z njihovimi svojci pozitivne izkušnje.
Organizacija: Raziskava je bila osredotočena na zdravstveno pismenost medicinskih sester in pacientov z ovirami. Fokus raziskave naslavlja predvsem pomen zdravstvenih ustanov in njihove delovne sile, ki so dolžni zagotavljati varno in inkluzivno okolje za ranljive skupine (v našem primeru paciente z ovirami).
Družba: Zdravstvena nega ima dolgo in pomembno zgodovino prilagajanja spremembam v družbi in njenim zdravstvenim potrebam ter se odziva na zahteve družbe. Medicinske sestre imajo pomembno vlogo pri zdravstveni oskrbi, zato je treba potrebne spremembe začeti pri njih. Medicinske sestre imajo vpliv tako na osebni in individualni ravni kot na ravni organizacije. Pri spodbujanju zdravstvene pismenosti so najpomembnejše, saj so tiste, ki delajo najbližje pacientom in imajo vsakodnevne stike z njimi.
Izvirnost: Izvirnost prispevka se kaže v proučevanju zelo aktualne družbene problematike, ki posega v doslej premalo raziskano zdravstveno pismenost medicinskih sester in pacientov z ovirami v Sloveniji. Raziskava je prva tovrstna raziskava v Sloveniji.
Omejitve/nadaljnje raziskovanje: V raziskavi je sodelovalo premajhno število medicinskih sester. To je prva tovrstna raziskava v slovenskem prostoru, zato ni možno izvesti ustrezne primerjave z ugotovitvami drugih domačih avtorjev. Uporabljen merski instrument smo delno izdelali sami, kajti obstoječi tuji merski instrument je zastarel in neustrezen. Izvedena raziskava podaja idejo za nadaljnje delo na tem tako zelo občutljivem, a vse bolj pomembnem področju dela medicinskih sester.
Literatura
Altin, S. & Stock, S. (2015). Health Literate Healthcare Organizations and their Role in Future Healthcare. Journal of Nursing & Care, 4(2), 1-3.
Appelgren, M., Bahtsevani, C., Persson, K. & Borglin, G. (2018). Nurses' experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach. BMC Nursing, 17(51), 1-19.
Aston, M., Breau, L. & MacLeod, E. (2014a). Diagnoses, labels and stereotypes: Supporting children with intellectual disabilities in the hospital. Journal of Intellectual Disabilities, 18(4), 291-304.
Aston, M., Breau, L. & MacLeod, E. (2014b). Understanding the importance of relationships: Perspective of children with intellectual disabilities, their parents, and nurses in Canada. Journal of Intellectual Disabilities, 18(3), 221-237.
Babnik, K., Štemberger Kolnik, T. & Bratuž, A. (2013). Zdravstvena pismenost: Stanje koncepta in nadaljnji razvoj z vključevanjem zdravstvene nege. Obzornik zdravstvene nege, 47(1), 62-73.
Beaucamp, A. & Sparkes, L. (2014). Health literacy and nursing. Australian Nursing and Midwifery Journal, 21(9), 49.
Bervar, A. (2017). Stališča strokovnih delavcev v vrtcu do otrok s posebnimi potrebami (Diplomska naloga). Univerza v Ljubljani, Pedagoška fakulteta, Ljubljana.
Boykins, A.D. (2014). Core Communication Competencies in Patient-Centered Care. The ABNF Journal, 25(2), 40-45.
Brach, C., Keller, D., Hernandez, L.M., Bauer, C., Parker, R., Dreyer, B., … Schillinger, D.J. (2012). Ten Attributes of Health Literate Health Care Organizations. Retrieved from
https://nam.edu/wp-content/uploads/2015/06/BPH_Ten_HLit_Attributes.pdf
Brach, C. (2017). The Journey to Become a Health Literate Organization: A Snapshot of Health System Improvement. Studies in health technology and informatics, 240, 203-237.
Brglez, M., Kaučič, B.M. & Limonšek, I. (2015). Ovire v komunikaciji pri obravnavi oseb z motnjo v duševnem razvoju. Revija za zdravstvene vede, 2(2), 46-60.
Brown, S. & Kalaitzidis, E. (2013). Barriers preventing high-quality nursing care of people with disabilities within acute care settings: a thematic literature review. Disability & Society, 28(7), 937-954.
Cafiero, M. (2013). Nurse Practitioners' Knowledge, Experience and Intention to Use Health Literacy Strategies in Clinical Practice. Journal of Health Communication, 18(1), 70-81.
Castell, E. & Stenfert Kroese, B. (2016). Midwives' experiences of caring for women with learning disabilities – A qualitative study. Midwifery, 36(2016), 35-42.
Clarke, D., Usick, R., Sanderson, A., Giles-Smith, L. & Baker, J. (2014). Emergency department staff attitudes towards mental health consumers: A literature review and thematic content analysis: Emergency attitudes towards mental illness. International Journal of Mental Health Nursing, 23(3), 273-284.
Cremonini, V., Pagnucci, N., Giacometti, F. & Rubbi, I. (2018). Health Care Professionals Attitudes Towards Mental Illness: Observational Study Performed at a Public Health Facility in Northern Italy. Archives of Psychiatric Nursing, 32(1), 24-30.
Crowe, A. & Averett, P. (2015). Attitudes of Mental Health Professionals toward Mental Illness: A Deeper Understanding. Journal of Mental Health Counseling, 37(1), 47-62.
Culp, A.G., Rojas-Guyler, L., Vidourek, R.A. & King, K.A. (2017). College Students’ Self-Efficacy, Knowledge, and Attitudes about Disability. American Journal of Health Studies, 32(1), 48-59.
Čremošnik, K. (2010). Pomen komunikacije s pacienti s posebnimi potrebami (Diplomska naloga). Univerza v Mariboru, Fakulteta za zdravstvene vede, Maribor.
Drake, G. (2016). Health literacy: The knowledge, experience, and education of advanced practice registered nurses in Arizona (Dissertation). University of Phoenix, Phoenix.
Eadie, C. (2014). Health Literacy: A Conceptual Review. Med-Surg Matters, 23(1), 1-13.
Ervin, D.A., Hennen, B., Merrick, J. & Morad, M. (2014). Healthcare for persons with intellectual and developmental disability in the community. Public Health, 15(2), 83.
Espinoza, K.M. & Heaton, L.J. (2016). Communicating with Patients with Special Health Care Needs. Special Care Dentistry. Dental Clinics of North America, 60(3), 693-705.
Geukes, C., Bröder, J. & Latteck, A.D. (2019). Health Literacy and People with Intellectual Disabilities: What We Know, What We Do Not Know, and What We Need: A Theoretical Discourse. International Journal of Environmental Research and Public Health, 16, 463.
Ghai, S., Sharma, N., Sharma, S. & Kaur, H. (2013). Shame & Stigma of Mental Illness. Delhi Psychiatry Journal, 16(2), 293-301.
Gosenca, K., Lipovec Čebron, U. & Zaviršek, D. (2016). Telo. In U. Lipovec Čebron (Ed). Kulturne kompetence in zdravstvena oskrba. Priročnik za razvijanje kulturnih kompetenc zdravstvenih delavcev (pp. 51-80). Ljubljana: Nacionalni inštitut za javno zdravje.
Hayran, O. & Özer, O. (2018). Organizational health literacy as a determinant of patient satisfaction. Public Health, 163, 20-26.
Höglund, B., Lindgren, P. & Larsson, M. (2013). Midwives' knowledge of, attitudes towards and experiences of caring for women with intellectual disability during pregnancy and childbirth: A cross-sectional study in Sweden. Midwifery, 29(8), 950-955.
Iacono, T., Bigby, C., Unsworth, C., Douglas, J. & Fitzpatrick, P. (2014). A systematic review of hospital experiences of people with intellectual disability. BMC Health Services Research, 14(1), 27-342.
Iftikhar, K., Alamgir, A., Maqbool, S., Rehan, W. & Akhtar, S. (2019). Knowledge and attitude of health care professionals towards persons with disability. Pakistan Armed Forces Medical Journal, 69(1), 147-153.
Ilkhani, M., 2013. The inpatient hospital care delivery to disabled children and young people and those with complex health needs (Doctoral thesis). University of Southampton, Faculty of Health Sciences, Southampton.
Jelenc, A., Keršič Svetel, M. & Lipovec Čebron, U. (2016). Kulturne kompetence in zdravstvena oskrba. In U. Lipovec Čebron (Ed). Kulturne kompetence in zdravstvena oskrba: priročnik za razvijanje kulturnih kompetenc zdravstvenih delavcev (pp. 11-28). Ljubljana: Nacionalni inštitut za javno zdravje.
Johnson, A. (2016). Health literacy: how nurses can make a difference. Australian Journal of Advanced Nursing, 33(2), 20-27.
Kennard, K.D. (2016). Health literacy concepts in nursing education. Nursing Education Perspective, 37(2), 118-119.
Khan, T.M., Umar, M., Naeem, A. & Marryam, M. (2016). Attitude of Medical Professionals Towards Persons with Disabilities. The Annals of Pakistan Institute of Medical Sciences, 12(1), 17-20.
Koh, H.K., Brach, C., Harris, L.M. & Parchman, M.L. (2013). A Proposed ‘Health Literate Care Model’ Would Constitute A Systems Approach To Improving Patients’ Engagement In Care. Health Affairs, 32(2), 357-367.
Krahn, G.L., Klein Walker, D. & Correa-De-Araujo, R. (2015). Persons With Disabilities as an Unrecognized Health Disparity Population. American Journal of Public Health, 105(2), 198-206.
Krasniqi, V. (2014). Disability in Post-War and Post-Independence Kosovo. SocialDialogue, Free magazine of The International Association of Schools od Social Work, 9(3), 25-28.
Kripalani, S., Wallston, K., Cavanaugh, K.L., Osborn, C.Y., Mulvaney, S., McDougald Scott, A. & Rothman, R.L. (2014). Measures to assess a health-literate organization. Vanderbilt Center for Effective Health Communication, 1-52.
Kunšič, M. (2016). Vloga medicinske sestre pri ohranjanju dostojanstva pacienta (Diplomska naloga). Fakulteta za zdravstvo Angele Boškin, Jesenice.
Lawless, J., Toronto, C.E. & Grammatica, G.L. (2016). Health literacy and information literacy: a concept comparison. Reference Services Review, 44(2), 144-162.
Lloyd, J.E., Song, H.J., Dennis, S.M., Dunbar, N., Harris, E. & Harris, M.F. (2018). A paucity of strategies for developing health literate organisations: A systematic review. PLoS ONE, 13(4), 1-17.
Macabasco-O'Connell, A. & Fry-Bowers, E.K. (2011). Knowledge and Perceptions of Health Literacy Among Nursing Professionals. Journal of Health Communication, 3(16), 295-307.
Mårtensson, G., Jacobsson, J.W. & Engström, M. (2014). Mental health nursing staff's attitudes towards mental illness: an analysis of related factors. Journal of psychiatric and mental health nursing, 21(9), 782-788.
McCauley, K., Elsom, S., Muir-Cochrane, E. & Lyneham, J. (2011). Midwives and assessment of perinatal mental health. Journal of Psychiatric and Mental Health Nursing, 18(9), 786-795.
Ministrstvo za delo, družino, socialne zadeve in enake možnosti Republike Slovenije (2014). Akcijski program za invalide 2014 – 2021. Retrieved from: https://www.zdis.si/files /akcijski_program_2014-2021.pdf
Mosley, C.M. & Taylor, B.J. (2017). Integration of Health Literacy Content Into Nursing Curriculum Utilizing the Health Literacy Expanded Model. Teaching and Learning in Nursing, 12(2), 109-116.
Mullan, J., Burns, P., Weston, K., McLennan, P., Rich, W., Crowther, S., Mansfield, K., Dixon, R., Moselen, E. & Osborne, R.H. (2017). Health Literacy amongst Health Professional University Students: A Study Using the Health Literacy Questionnaire. Education Sciences, 7(2), 1-11.
Noblett, J. & Henderson, C. (2015). Attitudes and stigma held by healthcare and mental health care professionals towards people with mental illness. Mental Health Today, 10(14), 24-27.
Novljan, E. (1997). Specialna pedagogika oseb z lažjo motnjo v duševnem razvoju. Ljubljana: Univerza v Ljubljani, Pedagoška fakulteta.
Parnell, T.A. (2014). Nursing Leadership Strategies, Health Literacy, and Patient Outcomes. Nurse Leader, 12(6), 49-52.
Pleasant, A., Rudd, R.E., O’Leary,C., Paasche-Orlow, M.K., Allen, M.P., Alvarado-Little, W., … Rosen, S. (2016). Considerations for a New Definition of Health Literacy. Retrieved from: http://nam.edu/wp-content/uploads/2016/04/Considerations-for-a-New-Definition-of-Health-Literacy.pdf
Rampre, M. (2016). Neverbalna komunikacija v zdravstveni negi (Diplomska naloga). Univerza v Mariboru, Fakulteta za zdravstvene vede, Maribor.
Rant, B. & Bregar, B. (2014). Razumevanje odnosa reševalcev do pacientov, ki so samomorilno ogroženi. Obzornik zdravstvene nege, 48(3), 177-194.
Rutar, D. (2018). Nova psihologija kulture hendikepa in drugo. In D. Rutar (Ed.), Egalitarne simbolizacije življenja s posebnimi potrebami (pp. 23-26). Kamnik: Cirius.
Scott, S.A. (2016). Health Literacy Education in Baccalaureate Nursing Programs in the United States. Nursing Education Perspectives, 37(3), 153-158.
Shakespeare, T. & Kleine, I. (2013). Educating Health Professionals about Disability: A Review of Interventions. Health and Social Care Education, 2(2), 20-37.
Sharkey, S., Lloyd, C., Tomlinson, R., Thomas, E., Martin, A., Logan, S. & Morris, C. (2014). Communicating with disabled children when inpatients: barriers and facilitators identified by parents and professionals in a qualitative study. Health Expectations, 19(3), 738-750.
The Constitution of the Republic of Slovenia. Official Gazette of the Republic of Slovenia, no. 33/91-I, 42/97, 66/2000 and 24/03. Retrieved from: https://www.varuh-rs.si/en/about-us/legal-framework/the-constitution-of-the-republic-of-slovenia/
The Patients' Rights Act (ZPacP). Official Gazette of the Republic of Slovenia no. 15/08. Retrieved from: http://dpnsee.org/wp-content/uploads/2019/04/Patients%E2%80%99-right-Act-eng-slo.pdf
Torres, R. & Nichols, J. (2014). Health literacy knowledge and experiences of associate degree nursing students: A pedagogical study. Teaching and Learning in Nursing, 9(2), 84-92.
United Nations. Convention on the Rights of Persons with Disabilities. (2006). Retrieved from: https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
Uysal, A., Albayrak, B., Koçulu, B., Kan, F. & Aydin, T. (2014). Attitudes of nursing students toward people with disabilities. Nurse Education Today, 34(5), 878-884.
Van der Kluit, M.J., Goossens, P.J.J., Leeuw, J. & de Rob, J.J. (2013). Attitude Disentangled: A Cross-Sectional Study into the Factors Underlying Attitudes of Nurses in Dutch Rehabilitation Centers toward Patients with Comorbid Mental Illness. Issues in Mental Health Nursing, 34(2), 124-132.
Vovk, A. (2020). Zdravstvena pismenost medicinskih sester in odnos do dela s pacienti z ovirami (Magistrsko delo). Fakulteta za zdravstvo Angele Boškin, Jesenice.
World Health Organization (1998). Health promotion glossary. Retrieved from:
http://www.who.int/healthpromotion/about/HPR%20Glossary%201998.pdf
World Health Organization (2014). Basic documents. Forty - eighth edition. Retrieved from: http://apps.who.int/gb/bd/PDF/bd48/basic-documents-48th-edition-en.pdf
Zamolo, B. (2014). Odnos in komunikacija med medicinsko sestro in pacientom. (Diplomska naloga). Univerza v Mariboru, Fakulteta za zdravstvene vede, Maribor.
Zaviršek, D. (2000). Hendikep kot kulturna travma. Historizacija podob, teles in vsakdanjih praks prizadetih ljudi. Ljubljana: Založba /*cf.
Zaviršek, D. (2014a). Time for recognition: people with disabilities today. Socialno delo, 53(3), 123-132.
Zaviršek, D. (2014b). Opredelitev hendikepa in razvoj študija hendikepa v socialnem delu. Mednarodna perspektiva. Socialno delo, 53(3), 133-146.
Zaviršek, D. (2018a). (Ne)plačano delo med prisilo in pravico, med prekarnostjo in samopotrditvijo. In D. Rutar (Ed.), Egalitarne simbolizacije življenja s posebnimi potrebami (pp. 141-169). Kamnik: Cirius.
Zaviršek, D. (2018b). Vpliv revščine, prekarnosti in zdravja na spretnosti odraslih: intersekcijska perspektiva. In P. Javrh (Ed.). Spretnosti odraslih (pp. 117-131). Ljubljana: Andragoški center Slovenije.
Zavod Republike Slovenije za šolstvo (2015). Kriteriji za opredelitev vrste in stopnje primanjkljajev, ovir oz. motenj otrok s posebnimi potrebami. Retrieved from:
http://www.zrss.si/pdf/Kriteriji-motenj-otrok-s-posebnimi-potrebami.pdf
Železnik, H. (2016). Komunikacija in pomen empatije v zdravstveni negi (Diplomska naloga). Univerza v Mariboru, Fakulteta za zdravstvene vede, Maribor.
Dodatne datoteke
Objavljeno
Številka
Rubrike
Licenca
Avtorske pravice (c) 2023 Andreja Vovk
To delo je licencirano pod Creative Commons Priznanje avtorstva-Deljenje pod enakimi 4.0 mednarodno licenco.